Information and Help for People with ME / Campaigns for Biomedical Research into ME / Other ME Support Groups in/near London / London NHS Hospital Departments / Benefits and Welfare Rights / Debt Advice / If in Distress

Information and Help for People with ME

The ME Association

Provide information, support and practical advice for people affected by ME/CFS, their families and their carers. They also fund research and offer education and training. Their website carries a list of support groups in the UK. Their helpline, ME Connect (0844 576 5326), is open 10-12am, 2-4 and 7-9 pm every day of the year and offers support to anyone with ME/CFS and their carers.

Action for ME

Provide information and support to people affected by ME/CFS and campaign for more research and for better treatments and services. They also offer a welfare rights line.

The 25% ME Group

Support for those who have the most severe form of ME/CFS, including the housebound, bedbound, and wheelchair users, as well as their carers.

Tymes Trust

Service for children and young people with ME/CFS and their families. They work with doctors, teachers and other specialists.

ME/CFS Parents

For parents or parents-to-be who suffer from ME.

Phoenix Rising

A website containing a large ME/CFS forum and an extensive database of articles and posts on ME/CFS. They are currently engaged in several online projects designed to enhance patients' treatment and physician options, reduce their isolation, and empower them.

Health Rising

An online source of information about ME and fibromyalgia and about treatments for the conditions.


Designed to be an easy way to start finding out about ME, to find local support groups, and to introduce people to some of the online forums and organisations. It also has links for people with fibromyalgia.

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Campaigns for Biomedical Research into ME

ME Research UK

Have as their principal aim the funding and commissioning of biomedical research into ME/CFS. They also aim to raise awareness of the illness and to provide high quality information about all aspects of it.

Invest in ME

Campaign for funding and biomedical research to bring about an understanding of the causes, effects and epidemiology of ME.

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Other ME Support Groups in/near London

Network MESH A self-help group serving west London.

Richmond and Kingston ME group

North London Network

Sussex & Kent ME/CFS Society

For fibromyalgia support groups in Greater London see

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London NHS Hospital Departments

King's College London: Chronic Fatigue Research and Treatment Unit Their routine treatment is cognitive behaviour therapy; also graded exercise therapy.

CFS/ME Service at St Bartholomew's Hospital

A multidisciplinary service for patients with CFS/ME.

Guy's and St Thomas' Fibromyalgia Service

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Benefits and Welfare Rights

Citizens Advice offer free advice face-to-face and by phone. They help with debt, benefits, employment, discrimination and much more. You can find your local bureau from their website at (See our Welfare Benefits section for offices in south east London.) Their online benefits advice is at

Benefits and Work produce extensive online guides to claiming illness/disability-related benefits. They also offer a newsletter and forum.

Disability Rights UK aim to promote disabled people's control, independence and equality, and to break the link between disability and poverty. They produce an annual guide to benefits: the Disability Rights Handbook, and also factsheets on benefits.

Child Poverty Action Group work to end poverty among children, young people and their families. They produce an annual guide to benefits: the Welfare Benefits and Tax Credit Handbook. Their information about local welfare assistance schemes for people in urgent need following an emergency is at,2DA3L,8RNEXY,8LJZ5,1

Action for ME offer a welfare rights line and leaflets and guides to help with claims.

The ME Association produce guides to claiming benefits.

Benefits calculators help you work out what you're entitled to:

A closed Facebook group provides advice and documents on a wide range of benefit-related issues for people with ME:

Rightsnet is a site for welfare rights advisers. They have a discussion forum on a wide range of benefits. Their site carries links to key websites that hold welfare benefit and tax credit related legislation, official guidance, caselaw and other reference materials

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Debt Advice

National Debtline A free independent telephone and online service for people who are in debt.

StepChange Debt Charity Free advice to help with debt problems or more general budgeting.

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If in Distress

The Samaritans phoneline operates 24 hours a day, every day of the year: 08457 90 90 90. Or you can email the Samaritans:

ME Connect, a phoneline provided by the ME Association, is open 10-12 am, 2-4 pm and 7-9 pm every day of the year and offers support to anyone with ME/CFS and their carers: 0844 576 5326. Calls cost the same as other standard landline numbers. If you have a landline or mobile call package, calls will normally come out of your inclusive minutes.